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Posts Tagged ‘multiple sclerosis’

Ultra-sensitive

Posted in Uncategorized, tagged , , on July 22, 2010 | Leave a Comment »

 “Nothing can cure the soul but the senses, just as nothing can cure the senses but the soul.” ~ Oscar Wilde City-top morning Senses are on my mind today. Have been since a friend stopped by and swatted an enormous black, winged bug off my shin. “Didn’t you feel that?” she asked incredulously. I didn’t. Not [...]

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Reclamation

Posted in health update, tagged , on December 1, 2009 | 10 Comments »

My blood pressure continues to leap like a flea whenever a nurse or doctor wraps a cuff around my arm. I’m cool as a cucumber when I measure it at home. But sit me down on wax paper in a room kept at 40 degrees — and whoo boy. White-coat syndrome, right? Well, that’s what I thought, too. I mean, face [...]

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The upside of side effects

Posted in Uncategorized, tagged , on November 17, 2009 | 3 Comments »

Last night as my heavy arms turned the wheel hand over lazy hand I gave thanks for the drooping lids, the sagging spine, the bone-tired, wrung-out sensation of weary cells dividing, conquering, congregating Depleted and wanting only to curl up as an O beside the dog. Surrender this sweet can’t be weak.

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Catching up to songs gone by

Posted in Uncategorized, tagged , , , on November 12, 2009 | 2 Comments »

Let life catch up to the songs you listen to, and some will actually transform from pleasant diversions into anthems that electrify your marrow. I first heard and watched the video for Idina Menzel’s song, “Brave,” early last year, before the diagnosis and career implosion. I remember enjoying it, then turning back to the day’s [...]

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Brains and bowling balls

Posted in Uncategorized, tagged on November 7, 2009 | Leave a Comment »

I managed to double-book our day today. (I think I need an assistant, but that seems somehow indulgent for an unemployed person.) Anyway, we’ll be starting the day (in a funky concidence, at the same hotel where we ended last night) at an MS Wellness Forum I signed us up for a month or so ago. [...]

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So very Monday

Posted in blogging, health update, tagged , on October 19, 2009 | Leave a Comment »

Usually, I wake up the mornings after my Avonex shot, rub sleep crumbs from my eyes and tip-toe into my day, as if I’m sneaking into a slumbering monster’s cave. But the last couple of post-shot mornings, something astounding happened: I felt OK. Good, even. No  headache, no “just-ran-a-double-marathon” fatigue, no fever or simulated flu. As [...]

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What a long, strange trip it’s been

Posted in health update, tagged , , on August 4, 2009 | 1 Comment »

Hmm. How do I sum up all the thoughts careening into each other in my muddled mind today, the eve of my surgery? Not sure it can be done, honestly. The word bedlam comes to mind. Rush hour in midtown Manhattan during a blackout? Better yet: the aisles of a South Florida hardware store in the [...]

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Ascendio

Posted in health update, tagged , , on July 17, 2009 | Leave a Comment »

For my Facebook status, I just posted that I was slowly ascending to a comfortable cruising altitude. And that seems about right. On mornings like this one, after my weekly Avonex shot, I always find myself crawling up and out of a cocoon of my own making, thanks to the one-two punch of the injection’s side effects and [...]

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Greedy reader

Posted in blogging, health update, tagged , on May 19, 2009 | Leave a Comment »

A front-page story in yesterday’s paper described a former military pilot’s efforts to get medical marijuana legalized in New York state. He uses the drug to ease his symptoms of primary-progressive MS — mostly pain and spasming limbs. The story made me realize how self-centered I’ve become, in terms of how I process certain information. [...]

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Mutiny in the body

Posted in blogging, health update, tagged , on March 11, 2009 | Leave a Comment »

Laid out on a narrow table, an IV snaking out of my right arm, I occasionally glanced over at the TV show playing across the room. It featured no soundtrack or car chases. Not even any drama, really. But oh, the casting! All-star: my right and left kidneys, co-starring my bladder. Earlier this week, a [...]

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